Improvement...

Friends, I am happy to report that I am continuing to improve!!

I've been at Physical Therapy for about a month now. Today we went through some comparative markers to try to gauge what kind of progress I've had, and indeed I AM improving! Getting stronger and doing more! :) Of course, I've known that, and can see/feel that I'm doing better, but hey, now it's documented in my charts. Ha ha!!!

The dizziness is pretty much gone, I'm walking much better, and getting up to speed! I'm pitching in a *little* bit around the house, and I'm helping with the kid's schooling. I'm able to do some needed exercises, and I'm doing better with fatigue and mental stimulation, although I still have some room to grow there! I also have some numbness and coordination issues that come and go. but overall we are seeing tremendous improvements and I'm SO GRATEFUL! I was on a muscle relaxant, 10mg every 4 hrs. I have been able to completely wean off of that, and I haven't had any muscle spasms in OVER a month!!! Praise God!

Thank you all for your prayers and support through this. God is good!

I have begun my new autoimmune therapy, but we are still working out the details to get that in full swing. I'm still believing for a COMPLETE healing - just letting y'all know I'm not giving up on that! :)  BUT I am very grateful that the Lord has rather miraculously brought this alternate therapy to our attention in the meantime. This therapy has really begun to put a lot of the pieces together for me. With such early intervention, even in the natural, things look promising.

There are still tears I cry, I don't want this horrible, unpredictable disease, but I see God moving and working and it truly is Amazing. Even when we don't see it, long before problems ever arise, God is moving on our behalf, aligning and setting things up for our good. I still don't understand ALL of His ways, but I know that He's good, and He loves us. No matter what we see, think, or feel. That is the TRUTH that we cling to!

May God make you strong and bold...

Hello, friends! I started physical therapy a little bit ago, and I'm definitely seeing progress!!! I still have setbacks and times when fear tries to get the best of me, but I'm learning and growing and continuing to see God's hand of guidance.

We were supposed to start the disease modifying drugs today, but after much prayer, research, and consulting, we feel we are being led down a different path and I AM SO GRATEFUL!!! So continued prayers fo healing and guidance as we walk this new path!!!

I certainly had some crazy emotions while we were set up to start the meds. While it was scary and emotional, it was also a valuable path for me to walk to help sort through some things. Fear can be a thing for me, unfortunately. The fear of starting Gilenya was very real, and I didn't really have a peace about starting it. But I also felt like not starting Gilyena, while it wasn't doing anything, WAS doing something. NOT doing, IS doing sometimes, right? Especially in this situation, when it was easy to feel a bit like a ticking time bomb, unsure when another attack would come! Did that make any sense? ;) So I had to process a few things! Is my God big enough to walk with me, even down THIS path? For me trusting for a healing is one thing, but what about these meds now?! Ya know?! :) Is He big enough to prevent nasty side effects? Is He big enough to walk with me through these nasty side effects!? What if I die? What if I don't die and they screw me up just enough to not kill me, but leave me a vegetable? Can I still trust God even through THIS?! The answer is YES!!!! I walked that scary path in my mind straight to the end and had to decide!! The conclusion, God could be trusted!!!! He truly loves us, and we don't have to be afraid. This doesn't mean we won't be afraid! ;) This doesn't mean we won't go through hard times. But He can be our anchor!!!!

My daughter wrote out this verse for me awhile ago. It is by my recumbent bike where I exercise and I love it!!!

All in my head...

Our new favorite joke around here is, "Don't worry, it's all in your head!" Cause for me, it is!! LOL

When we first went to Urgent Care with my symptoms, she couldn't find anything alarming. So she encouraged us to plan a follow up with my PCP, but not to think too much about symptoms. "I'm not saying it's all in your head, but you know?" Yes, I know!! Actually, I do know how easy it is for me to have "sympathy pains", so I truly wasn't insulted by her comment.

Now, we have discovered it IS all neurological. So, when I have weird symptoms or tire too easily at physical therapy, we just remember..."It's all in my head!!" Sometimes, I go to describe something weird that's going on in my body, and I catch myself going to say...Maybe this is just in...wait it IS in my head!!!! I'm having a weird symptom!!! LOL