It has been over three months since I have had a major relapse. I am so grateful. I have no real idea how this works with MS...since well, I've never had it before. :) So I'm calling three months with no major relapse - Good News!!!! I've completely weaned off the muscle relaxant and it's been almost three months since I've had a spasm!!! I still have fatigue and cognitive/stress capacity issues that need improvement and numbness & dizziness that come and go, but I'm walking normal and up to speed most days and I feel like I'm definitely improving!!! I've been getting better at my balance exercises, and I've been able to push myself more when exercising! I had been making dinner prolly once a week for the last several weeks, but now the last few days I've been in the kitchen cooking more!!! I've had a few dips the last few months, but I feel that recently the dips don't seem to last as long, maybe a day, or an afternoon. I seem to bounce back quicker.
I went to see my THIRD Neuro and I think I finally found a winner!! Super sweet Neuro with 3 daughters and 11 grandchildren. He came in dressed normal, no white coat, and no superiority complex. He said I was the boss! He told me he would make his recommendations and would shoot straight with me, but I was welcome to disagree with him and that he's not always right! I brought him information about the MS protocol I'm on. I'm hoping he reads that! :) Of course, he wants me on meds and made his recommendations, but was fine with me trying my current protocol. He in no way tried to "punish" me for not doing things his way.
He scheduled a follow-up MRI for December and then a follow-up appt with him. He wants my MRI on a 3 Tesla machine rather than the 1.5 Telsa machine I had it done on last time. So more detail! I was a bit worried that this would mean the tube would be smaller, but I called today and the tube is actually 1 cm bigger! They also said my husband could be in the room with me again!!! So I'm super relieved about that!!! :)
I'm still not driving and would love to see enough cognitive/stress capacity improvement and clearing of lesions on the MRI to feel comfortable with driving again. I'm not really anxious to get out and about everywhere just yet, but feeling comfortable driving again would be good!!! Also prayers we stay healthy, as sickness can cause relapses.
We also discovered osteopenia and a 2nd autoimmune blood condition in all of our hunting. The good news about the 2nd autoimmune blood condition, that I really don't know much about, is that when we retested my numbers recently, my numbers had come down quite a bit!!! So that looks like progress to me too!! :) I'm taking it!!!
I haven't been to the lab in about 3 weeks. I'm sure my lab tech ladies are missing me and wondering if I'm ok. LOL So I'm headed in tomorrow for more testing. So far my body seems to be responding extremely well to the protocol and we are grateful for the doors that God has opened.
Once again, thank you to all of you who have helped carry us through with prayers, help, support, encouragement. The Lord has also brought me an awesome girl who can help with floors and bathrooms. (Y'all know how picky I am, so we know this is a miracle!!!) Several friends and family members are still graciously doing my grocery shopping for me, and we also still have family that is pitching in with meals for us. We are very grateful and very blessed. Thank you all for your continued prayers and love!!!
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